Helping sufferers of ME and CFS find their lives
What is ME? ME (commonly known as "Chronic Fatigue Syndrome") is a systemic neuro-immune disease characterised by post-exertion malaise (a severe worsening of symptoms after even minimal exertion). It causes dysregulation of both the immune system and the nervous system. The effects of ME are devastating enough to leave 25% of patients housebound or bedbound and an estimated 75% unable to work. ME affects 15 to 30 million around the world, yet this disease remains invisible and people are missing from their own lives.
WLMESH exists to help you find your life again.
WLMESH AT A GLANCE
A Bit of Background
WLMESH was established in 1984 to help sufferers of ME and CFS across West Lothian. We believe that its possible, not just to exist, but to live with ME. By sharing our stories, we understand that we are not alone and by sharing coping strategies, we can each live the best life possible while we wait for remission or cure.
West Lothian Myalgic Encephalomyelitis Self-help Group (WLMESH) is a Charity Registered in Scotland No SC023544
Making A Difference
MONTHLY DROP IN
Sharing IS Caring
We are not currently meeting regularly together. Initially this was because in the winter months most of us have lower energy than at other times of year. But, now with coronavirus on the prowl and our immune systems compromised, we decided that meeting together was not the best idea. We are currently looking at using video tools such as Video messenger and Zoom to se whether meeting that way will work for us.
Once we are set up again you are most welcome at these informal events where we share our experiences with one another. You will learn that you are not alone and that others have exactly the same feelings of frustration, despair and at the same time hope for the future.
Membership is free. We do ask you to become a member so that we can store your contact details. This allows us to share exciting and fun events and information with you. We do not let anyone else see your details, ever.
Social life without strings
We organise day trips and meals at local venues occasionally throughout the year. This helps us to bond socially and feel like we can participate in something normal.
For example: We organise a Christmas meal for sufferers and play games etc and we all have a laugh when the brain fog is so bad that we hand round christmas cards with the names missing because we cant remember peoples names.
Unfortunately, the average ME sufferer can never plan in advance if they will be well enough to attend but we understand. Tell us you would like to come in advance and then, if you cant make it on the day, it's no problem. You are not letting us down.